Dr. Danis, M.D., M.P.H.
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Diane M. Danis, M.D.  
Resources for families of children with special needs

Web Resources

We have provided a link to these sites because they have information that may be of interest to you.
Dr. Danis does not necessarily endorse the views or information presented on these sites. Dr. Danis does not endorse any commercial products or information that may be presented or advertised on
these sites. The resources on this site are solely for the purpose of general patient education, and
may not be relied upon as a substitute for professional medical care. Consult your physician for evaluation and treatment of specific medical conditions.

*By clicking the links below you will be leaving this practices website (danismd.com). This practice does not control the “Related Links” destination sites' content.

Allergy Links

According to the National Institute of Allergy and Infectious Disease, between six and eight percent of all children suffer from one type or another of food allergy. These links offer authoritative information on different types of allergies.

American College of Allergy, Asthma, and Immunology (Useful information about food and environmental allergies) - Click Here

Allergy, Asthma and Immunology (Lucile Packard Children's Hospital Stanford - Click Here

Allergic rhinitis (From the Children’s Hospital Wisconsin in Milwaukee) - Click Here

Allergy testing (From Lab Tests Online) - Click Here

Asthma:

  1. (From the Mayo Clinic) - Click Here
  2. (From the National Institute of Health) - Click Here
  3. (From the Centers for Disease Control) - Click Here

Bee or yellowjacket Sting (From Aurora, Colorado’s Children’s Hospital) - Click Here

Celiac disease (From the National Institute of Diabetes and Digestive and Kidney Diseases) - Click Here

Drug allergy (From the Mayo Clinic) - Click Here

Dust mites (From Children’s Hospital Boston) - Click Here

Eczema:

  1. (From Akron Children's Hospital) - Click Here
  2. (From Ask Dr. Sears) - Click Here
  3. (From the National Institute of Health) - Click Here

Egg allergy (From the Mayo Clinic) - Click Here

Hives (From the National Institute of Health) - Click Here

Lactose intolerance: (From the National Digestive Diseases Information Clearing house) - Click Here

Latex allergy (From the Cincinnati Children’s Hospital) - Click Here

Milk allergy (From the Rochester, Minn. Mayo Clinic) - Click Here

Mold (From the Centers for Disease Control and Prevention) - Click Here

Nut allergy:

  1. (From WebMD) - Click Here
  2. (From Eating with Food Allergies) - Click Here

Anxiety Disorders (OCD, Selective Mutism, Trichotillomania)

BOOKS:

Anne Marie Albano  You and Your Anxious Child
Tamar Chansky Freeing Your Child From Anxiety
Dawn Huebner  What to do When you Worry Too Much (for kids)
Kari Buron When My Worries Get Too Big (for kids)
Katharina Manassis Keys to Parenting Your Anxious Child
Ronald Rapee Helping your Anxious Child: A Step-by-Step Guide for Parents
Philip Kendall and Kristina Hedtke Coping Cat workbook and therapist manual
Philip Kendall, Jennifer Podell, and Elizabeth Gosch Coping Cat Parent Companion
Mary F. Coffman Uncle Lightfoot, Flip That Switch: Overcoming Fear of the Dark
The book, designed to be read to the child by an adult at bedtime, tells the story of a young boy who overcomes his fear of the dark by playing exposure games with a supportive character (Uncle Lightfoot). The volume includes a parent guidebook and encourages exercises such as looking for a toy in the dark and identifying sounds.
   
For kids:  
Jane Annunziata, Marc Nemiroff and Bryan Langdo Sometimes I'm Scared
Kevin Henkes Wemberly Worried
   
OCD:  
Tamar E. Chansky Freeing Your Child from Obsessive-Compulsive Disorder
John S. March Talking Back to OCD: The Program That Helps Kids and Teens Say "No Way"
John Piacentini, Audra Langley, Tami Roblek It's Only a False Alarm: A Cognitive Behavioral Treatment Program Workbook Treatments That Work
   
Selective Mutism:  
Angela E. McHolm, Charles E. Cunningham, and Melanie K. Vanier Helping Your Child With Selective Mutism: Steps to Overcome a Fear of Speaking
R. Lindsey Bergman Treatment for Children with Selective Mutism: An Integrative Behavioral Approach (Programs That Work)

WEBSITES:

Anxiety Disorders Association of America - Click Here

Association for the Advancement of Behavioral and Cognitive Therapies - Click Here

Child Anxiety Network - Click Here

National Institute of Mental Helath - Click Here

Obsessive Compulsive Disorders Foundation - Click Here

OCD Center of Los Angeles - Click Here

Body focused repetitive behaviors (for information on body related repeat behaviors such as skin picking) - Click Here

Selected Mutism Group - Click Here

UCLA Semel Institute Child OCD, Anxiety & Tic Disorders Program - Click Here

Westwood Institute for Anxiety Disorders - Click Here

 

Attention Deficit Hyperactivity Disorder (ADHD/ADD)

BOOKS:

E. Hallowell & J. Ratey Driven to Distraction
J. Cooper-Kahn & L. Dietzel  Late, Lost and Unprepared
J. Kolberg & K. Nadeau ADD-Friendly ways to Organize Your Life
P. Dawson & R. Guare Smart but Scattered
Sanford Newmark ADHD Without Drugs
Sandra Rief How to Reach and Teach ADD/ADHD Children
Russell Barkley Taking Charge of ADHD

WEBSITES:

www.learningandthebrain.com
Organization that presents excellent conferences for parents/
educators about evidence-based teaching strategies based on neuroscience.

www.triplep.net
Positive parent training program.

www.incredibleyears.com
Parent training program for preschoolers with ADHD.

www.jfhc.co.uk
British program for parents of young children with ADHD.

www.pcit.org
Website for Parent-Child Interaction Therapy.

www.ParentsMedGuide.org
ADHD Parents Medication Guide
The guide provides information on symptoms, treatment options, types of medications, side effects, and co-occurring disorders.

www.ncbi.nlm.nih.gov
ADHD (from National Institute of Health)

www.nimh.nih.gov
ADHD (from National Institute of Mental Health)

www.cdc.gov
ADHD (from Centers for Disease Control)

www.CHADD.org
A national non-profit organization working to improve the lives of affected people through education, advocacy and support for children and adults with Attention Deficit/Hyperactivity Disorder. -

www.pbs.org
Dr. Mel Levine On difficulties with attenton.

www.understood.org
A free on-line resource for parents of children with learning and attention problems.  There are many wonderful tools on this site, gathered into one easily accessible on-line location.  Well worth a look! 

Autism/PDD/Asperger Syndrome

BOOKS:

Cullinane, Diane Behavioral Challenges in Children with Autism and Other Special Needs: The Developmental Approach
Davis, Andrea Floortime Strategies to Promote Development in Children and Teens: A User's Guide to the DIR
Paparella, Tanya More Than Hope
Sally J. Rogers An Early Start for Your Child with Autism
Sussman, Fern More Than Words
Kranowitz, Carol The Out of Sync Child
Kranowitz, Carol Growing an In-Sync Child
Show, Joyce Teaching Your Child With Love and Skill
Robinson, Ricki  Autism Solutions

WEBSITES:

Autism, Asperger syndrome and related spectrum conditions 2014
Resources on Autism, and autism spectrum conditions 2014  

Foothill Autism Alliance
A non-profit, all volunteer organization of parents, professionals, and care-givers, dedicated to providing education, resources & support to the autism community.

Asperger’s Disorder Homepage
Run by U. Mass. Assistant Professor of Psychiatry R. Kaan Ozbayrak, MD

Autism/Asperger’s Publishing Company
An independent publishing company specializing in books and multimedia on autism and related exceptionalities

Autism Spectrum Oasis
MAAP and OASIS are working together.

Autism Books
A Spectrum of Books on Autism and ASD.

Autism Service Dogs of America
A non-profit organization that raises and trains services dogs for children with autism.

The Autism Society Of America
The ASA is the oldest and largest grassroots autism group in the US. Resources, information, providers, services and support for children with autism.

Autism Society of Los Angeles
Website for the Autism Society of Los Angeles

Autism Speaks
A group which, when it merged with the National Alliance for Autism Research and Cure Autism Now, created the world’s largest autism advocacy organization.

Autism Today
A comprehensive online directory.

Cambridge Center for Behavioral Science
Website for the Cambridge Center for Behavioral Science, a non-profit organization that harnesses the expertise of hundreds of  behavioral scientists to solve problems in the home, school, community and the workplace.

CDC’s Autism Information Center
From the Centers for Disease Control and Prevention

Center For Autism and Related Disorders
CARD is an organization providing ABA interventions for individuals with autism.  There are many useful resources on their website, including information about the role of ABA in autism treatment.

Easter Seals’ Autism Services
Lists of resources broken up by age, for young children, school-aged kids, and adults.

The Hanen Centre
Wonderful information about early language development.

IAN Project
The Interactive Autism Network hosts an online research effort to join researchers and families of those with autistic-spectrum disorders.

Koegel Autism
Pivotal Response Training is a research based intervention providing a naturalistic intervention model derived from ABA.

The MIND Institute
The MIND Institute is a research center housed at UC Davis. Their focus is on neurodevelopmental disorders.  The website is an excellent resource for parents and professionals.

The National Institute of Mental Health
The National Institute of Mental Health website for information about autism spectrum disorders.

NINDS’ Autism Fact Sheet
From the National Institute of Neurological Disorders and Stroke.

OAR
OAR is an online resource for parents about autism.

Profectum
This foundation is dedicated to advancing the development of all individuals + adults with special needs. The DIR model is central to it's philosophy. Provides parent training in Floor time strategies as well as on-line learning + conferences.

RDIconnect
Relationship Development Intervention is a parent driven intervention in which the parent is the mentor and the child the apprentice with a focus on communication and social skills.

STARCentre
Great videos for parents about sensory integration.

Wrong Planet
An online community for those with autism and Asperger’s.

Behavior and Parenting

BOOKS:

Cynthia Whitham, MSW Win the Whining War and Other Skirmishes
A. Faber & E. Mazlish How to Talk so Kids Will Listen and Listen So Kids Will Talk
Stanley Greenspan The Challenging Child
Ross Greene The Explosive Child
M. Dornbush & S. Pruitt Teaching the Tiger

WEBSITES:

Children’s books – When Lester Lost His Cool (Printed by Mono Unlimited) - Click Here

The Incredible Years
Parent training program for preschoolers with challenging behaviors.

PCIT International
Parent training program for kids with behavior issues.

www.jfhc.co.uk
British program for parents of young children with ADHD.

Psychology in Everyday Life: The Psych Files Episodes 33 and 34
describes “timeout” strategies - Found on iTunes
Podcast/episode-33-timeout-revisited
Podcast/episode-34-timeout-revisited

Think Kids
An organization that teaches and disseminates information about the collaborative problem solving approach of Drs. Greene and Ablon (The Explosive Child)

Triple P
Positive parent Training program.

Body Focused Repetitive Behaviors (hair pulling, skin picking)


This is the website for the Trichotillomania Learning Center, a non-profit resource for dissemination of information about body focused repetitive behaviors.  Their website has wonderful resources about both hair pulling and skin picking. - Click Here

 

Bullying

  • American Academy of Pediatrics. Avoiding bullying. Click Here
  • Mayo Clinic. Bullying: help your children handle a school bully. Click Here
  • Pacer National Bullying Prevention Center. Click Here
  • US Department of Health and Human Services. Click Here

Cerebral Palsy

Complementary & Alternative Medicine

Dental Health & Services

The American Academy of Pediatric Dentistry
With over 7,000 members, the AAPD represents both exclusive pediatric dentists and general dentists with pediatric patients.

American Dental Association
The premiere clinical association of dentistry

Children And Gum Disease
From the American Academy of Periodontology.

Colgate’s Kids World
A kids page with games and activities to make brushing fun.

Dental Health
From WebMD’s Oral Health Center page.

Mouth Healthy
This website is a service of the ADA and explains dental health across the lifespan.

National Children’s Dental Health Month
Run by the ADA, NCDHM has been going since February of 1941. Click here for activity sheets and information.

National Maternal And Child Oral Health Resource Center
One of the most effective ways for a child to learn oral health is to pick it up from his mother.

 

Disaster Registry

SIGN UP FOR EMERGENCY ALERTS

Los Angeles County has implemented an emergency mass notification system that will be used to contact County residents and businesses via recorded phone messages, text messages or e-mail messages in case of emergency. The system, called Alert LA County, will be used by the County’s Emergency Operations Center to notify residents and businesses of emergencies or critical situations and provide information regarding necessary actions, such as evacuations. The system utilizes the telephone companies’ 911 database and is able to contact land-line telephone numbers, whether listed or unlisted. If the call is picked up by an answering machine, the system will leave a recorded message. If the number called is busy or does not answer, the system will redial the number in an attempt to deliver the message. The system is also TTY/TDD compatible. Click HERE

Down Syndrome

One in 800 to 1,000 babies have Down syndrome, marked by learning disabilities, physical similarities of the face (short neck, wide nose, epicanthic fold to the eyes), and a series of related birth defects such as congenital heart defects. Yet few human beings seem able to love and be loved more than someone with Down syndrome. These links help parents of children with Down syndrome, and pregnant women, learn more about it.

The Arc
Formerly the Association for Retarded Citizens, a community-based organization for those with intellectual and developmental disabilities.

Breastfeeding a Baby With Down Syndrome
An informational page from La Leche League.

Causes of Down Syndrome
An information page from the Mayo clinic.

Down’s Heart Group
A UK charity for those with cardiac issues.

The Down Syndrome Education Trust
A British group disseminating information about Down Syndrome around the globe.

Down Syndrome Research Foundation
A non-profit organization dedicated to improving the lives of people with Down Syndrome.

Global Down Syndrome
An organization dedicated to improving the lives of people with Down Syndrome through research, medical care, education, and advocacy.

Health Supervision for Children with Down Syndrome
A policy statement from the American Academy of Pediatrics.

Hearing and Vision Loss Associated with Down Syndrome
An informational page from A-Z on Deafblindness.

International Mosaic Down Syndrome Association (IMDSA)
A nonprofit founded in 2002 to aid families with a member with mosaic Down syndrome.

Mosaic Down Syndrome
Information on the Down syndrome variant, where only some of the genes have the trisomy 21 variant.

National Association for Down Syndrome
Founded in Chicago in 1961, NADS works to ensure all children with Down syndrome reach their full potential.

National Down Syndrome Congress
An annual meeting for families of individuals with Down Syndrome.

National Down Syndrome Society
Committed to enhancing the life of those with Down Syndrome.

Nutrition and Down Syndrome
An informational page from the University of Illinois at Chicago’s Department of Disability and Human Development.

Obstructive Sleep Apnea
An informational page on a condition associated with Down syndrome, from the Lucile Packard Children’s Hospital of Stanford.

Prenatal Testing for Down Syndrome
From DS-Health, a Web site run by pediatrician Len Leshin, MD.

Primary Care of Infants and Young Children with Down Syndrome

Woodbine House
A publisher of books featuring a variety of special-needs topics, characters, and stories, with dozens of books on Down syndrome.

Environmental Health

ATSDR
Agency for Toxic Substances and Disease Registry provides health information to prevent harmful exposures and disease related to toxic substances. It includes assessments of waste sites, health consultation on hazardous substances and education and training. The site includes ToxFAQs and case studies in environmental medicine. - Click Here

ATSDR ToxFAQ
Requently asked questions about contaminants found at hazardous waste sites- an extensive collection of brief primers on toxic substances. - Click Here

EPA Office of Children’s Health Protection
Web site of the EPA’s Office of Childrens Health Protection very useful for child-related regulatory references. - Click Here

EPA Search Engine for Environmental Hazards
EPA’s easy to use search engine which yields results from government and non-government internet domains for common environmental hazards - Click Here

Healthy Places
Identifies aspects of the environment such as housing, urban development, land use, and transportation that can lead to healthier communities and healthier people. - Click Here

Household Products Database
By entering a name or brand of a household product this site will provide a list of ingredient and other useful information. This site also provides a Material Safety Data Sheet. - Click Here

HSDB (Hazardous Substances Data bank)
By entering a chemical name, this database will yield over 5000 reviews of toxic chemicals
- Click Here

Useful resources - Patient Resources in Environmental Health - Click Here

Welcoming Your Baby Into An Environmentally Safe Home - Click Here

Gifted Education

Bridges Academy - Click Here

Center for Talented Youth - Click Here

Institute for Educational Advancement - Click Here

Learning Disabilities

Neurodevelopmental disorders
The MIND Institute provides a comprehensive multidisciplinary approach to the assessment, diagnosis and treatment planning for neurodevelopmental disorders. - Click Here

The International Dyslexia Association (IDA)
A non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. - Click Here

Understood.org
A free on-line resource for parents of children with learning and attention problems.  There are many wonderful tools on this site, gathered into one easily accessible on-line location. - Click Here

Legal Information

Advocates for Special Education - Home + California Specific

Dina Kaplan (Free Consultation) - Click Here

Special Education Law - Click Here

Conservatorship Clinic - Provided by Bet Tzedek Legal Services - Click Here

Mitochondrial Disorders

Mitochondrial disorders occur in up to 1 in 4000 people. In some cases these disorders are inherited. Affecting the energy production systems of the body, symptoms can mimic many other disorders and may be intermittent and vary in severity. Diagnosis can be difficult. - Click Here

Rare Neurodevelopmental Disorders

NORD (National Organization for Rare Disorders)
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by a rare disease. NORD represents the rare disease community by providing an alliance of voluntary health organizations to promote identification, treatment, and cure of these rare disorders through education, advocacy, research, and service. - Click Here

NF (Neurofibromatosis) Children’s Tumor Foundation
Neurofibromatosis is the term for a set of distinct genetic disorders characterized by their tendency to cause multiple, benign (non-cancerous) tumors to grow on nerves. NF affects roughly 100,000 individuals in the U.S. alone. It strikes people of all races and ethnic origins worldwide, and both sexes, equally. - Click Here

Rett Syndrome
The International Rett Syndrome Foundation provides research funding for promising basic science and translational research, supports families dealing with Rett syndrome, advocates at the national level to promote awareness and generate interest in funding for research, particularly through the National Institutes of Health. IRSF is recognized throughout the world as the single most important source of comprehensive information about the clinical and research aspects of Rett syndrome.
- Click Here

Tuberous sclerosis
Tuberous sclerosis or tuberous scleros complex
is a genetic disorder that affects about 1 million people worldwide.
While the severity of the condition varies from person to person, benign
tumors in many different places in the body are characteristic. Seizures,
developmental delay, autism, and intellectual disabilities are seen to
varying degrees in some people affected by TSC: many individuals with TSC
live independent lives without these developmental challenges. To learn
more about TS - Click Here

Sleep Disorders

BOOKS:

Ricki Robinson Autism Solutions  (contains a good chapter on sleep)

SAMPLE SLEEP LOG:
Every day, record the following data in chart format:

Time into bed Time of sleep onset
Awakenings during night Morning awakenings
Naps Fluid intake
Medication Other events

HELPFUL FILES:

Tips for Good Sleep

WEBSITES:

Bedtime Problems – From Cincinnati Children’s Hospital.

Child Sleep Habits Questionnaire

Newborn Sleep Patterns – From the Lucile Packard Children’s Hospital at Stanford, CA

Nightmares – From Kids Health

Restless Leg Syndrome – From the Mayo Clinic of Rochester, Minnesota

Snoring – From Sleep for Kids

Tips for Improving Your Child’s Sleep Habits

Social Skills

Helping Children Make Friends - Click Here

Michelle Garcia Winner - Click Here

RDI - Click Here

UCLA PEERS - Click Here

WEBSITES ON BULLYING:

What to do About Bullying - Click Here

For elementary school students - Click Here

For middle and high school students - Click Here

For parents, educators and professionals - Click Here

Sports & Special Needs

Speech, Language, and Hearing Disorders

The American Speech-Language-Hearing Association (ASHA)
web site contains a wealth of information about speech, language, and hearing development and disorders with sections on:

  • Hearing and balance
  • Speech, language, and swallowing
  • Advocacy and outreach
  • Health insurance

If you are having difficulty securing insurance coverage for speech or hearing services, there is information on the site to help navigate the system, deal with denials, and file appeals HERE.

In addition, links for alternative funding sources, support groups, and summer camps also are provided HERE. Here is a sampling of some information on the site:

  • Prevalence and Incidence of Hearing Loss in Children
  • Effects of Hearing Loss on Development
  • Noisy Toys
  • Understanding Auditory Processing Disorders in Children
  • How Does Your Child Hear and Talk?
  • Learning Two Languages
  • Autism Spectrum Disorders
  • Feeding and Swallowing Disorders in Children

Scottish Rite Childhood Language Center
The Scottish Rite CLC is committed to providing quality services to young children with speech and language disorders. Their primary goals are 1) early identification and treatment of language disorders and 2) facilitating family involvement in this process. They believe early intervention can help prevent a speech and language disorder from developing into a lifelong handicap. In addition, it can help curtail the development of secondary language delays such as behavior, emotional, and learning problems.

Hanen Center - Speech and Language Development for Children
The Hanen Centre is a Canadian not-for-profit charitable organization committed to supporting parents, early childhood educators and speech-language pathologists in their efforts to promote the best possible language, social and literacy skills in young children.

The Childhood Apraxia of Speech Association of North America (CASANA)
The mission: To strengthen the support systems in the lives of children with apraxia , so that each child has their best opportunity to develop speech. For children with significant speech motor-planning deficits there should be an assumption that the child, at least for a period of time, will need frequent and intensive individual speech therapy. In the early phases of treatment for children with moderate to severe CAS, appropriate frequency may range from 3-5 individual speech therapy sessions per week.

Special Programs and Summer Camps

Traumatic Brain Injury